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The gluten free community has been in agreement for some time now that mainstream oats are highly cross contaminated with gluten and should be avoided by Celiacs. However, the safety of CERTIFIED gluten free oats is still up for debate. Some celiacs eat certified gluten free oats and don’t react and others have definitive reactions. Still others believe that pure oats are not possible due to crop rotation of oats on the same fields as gluten-containing grains, leading to cross contamination at the very beginning of the supply chain.
I’d like to know how the gluten free community feels about this issue and so request that you take a minute or two of your time to provide a personal response.
Thank you!
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I don’t eat oats because you can’t get certified ones in New Zealand.
But I know that I would be super careful about eating them if they were available. Mainly because of avenin, that protein in oats which is super similar to gluten. Apparently some coeliac’s bodies can’t tell the difference, perhaps that’s why some people react?
I am very sensitive to all things gluten, and I have not had any reaction with certified gf oats. I eat them regularly and love to grind them into flour. Very nice!
I eat oats that are certified gluten free. I don’t seem to have any kind of problem with them. I buy Bob’s Old Fashioned and Bob’s Quick Oats, making sure to see “gluten free” on the label.
Thanks to everyone for their responses so far. This is really helpful. If you know anyone else who has to eat gluten free and who can provide a response, please share the link with them.
It is an interesting question. I was diagnosed in 1995, back when ALL oats were still a no-no. Even after the recommendations changed, I didn’t eat the GF oats because I didn’t feel like I was really missing oats or oat products in my well-adjusted GF diet.
Just last year I began eating oats after getting my annual blood work completed. Blood work showed that I was compliant with my diet so I decided to try some oats. I mainly eat Udi’s GF granola and periodically I make oatmeal cookies from Bob’s GF oats. So far my bloodwork has shown no change due to the addition of the oats to my diet. Nor have I had any obvious reactions to them. Although my oat-eating levels are fairly minimal though compared to some. At a max I eat 2 Tbsp a day of granola, 4-5 days a week.
Thanks for the informal ‘study’!
Thanks, Renee, for contributing to my “study.” I appreciate you sharing your response and approach to eating certified gluten free oats.
I eat Glutenfreeda instant oats when traveling and bake with Bob’s Red Mill. I’ve had no problem with either product. Many of the members of our local celiac chapter eat gluten free oats on a regular basis.
Thanks, Barb, for your response. I appreciate it!
hi rachel! (its bernice, here, from the schar lunch)
yes i eat bob’s red mill gfree oatmeal all the time, and with no ill effects. i grind it for flour and use it in cookies and am going to start using it in bread, too. i know some folks can’t tolerate it, but it seems fine for me.
I use Bob’s Red Mill GF oats regularly and have never had an issue. One of my favorite breakfasts
Yes! I love GlutenFreeda’s instant oats. They’re great!
I did not eat certified oats when I was first diagnosed (waited 6 months). Now I do, and love having Udi’s granola with fruit in the morning!
Stick to the gluten free diet as sttricly as possible and you should begin to feel better in about 6-8 weeks, it won’t be like waking up one day and saying WOW I feel like singing and dancing! it’s more like little things, like when that foggy brain feeling goes away, or the mid day sleepies, or when you realize that you ate three hours ago and you still haven’t had to do the bathroom dash, you know the one and there’s no toilets in the middle of the 401 highway I began feeling human after about six weeks and I really noticed how much I had improved during a camping trip, six months after going gluten free. The previous year was misery (We lived on ramen noodles while wilderness backpacking -imagine the misery!) the GF trip was amazing.
I do eat BRM GF oats and flour. When I was first diagnosed I used to eat the McCann’s oats before we realized the need for the certified oats. I don’t eat huge quantities of the oats and probably use the flour more often than the oats.
I came here via a Google search because my son and I both got glutened today, and we ate at home. The only thing we can figure is that the Bob’s Red Mill GF rolled oats did it to us. We had oatmeal pancakes from scratch (with sorghum and almond flour, both of which I’ve used recently), and I baked some tasty oat cereal bars. I’m celiac, he’s Asperger’s/gluten sensitive. We got sick in different ways at the same time, the same number of hours after our meals. So maybe it’s okay for most, but not everyone.
Unfortunately, I just ordered some organic GF oats from Amazon. I may try them anyway, just to see if they’re any better for me, but I may not want to take that chance. My son says no way.
Hi Tamar-
I’m sorry to hear you got sick. I certainly know the feeling and it’s not fun. It does seem that many are okay with eating certified gluten free oats, but there also seems to be a very select few who cannot tolerate them. I am not suggesting you should try the GF oats, but if you decide to, it might be a good idea to give yourself a little break in between to make sure your “back to normal” from the experience you just had. Otherwise it might be difficult to determine if you are in fact responding to these oats or still experiencing effects from the last exposure. Just a thought. Good luck. Let me know how it turns out.
Best,
Rachel
I cannot tolerate oats. I gave up gluten about a year ago and had some Bob’s Red Mill GF oats maybe 3 months ago and immediately had a terrible reaction. I am not celiac, but I have an intolerance which mostly gives me a traditional, allergic, histine (sinuses, sneezing, eyes, and occasional digestive) reaction. The reaction with oats was actually a digestive one. Very strange, but I learned and will not make the mistake again.
Thank you for sharing your response. This is very helpful!
Thanks for supporting the gluten free family.
diagnosed with celiac about 4 months ago…udis gluten free granola (with certified oats)is a no go for me, i get a reaction
Gluten free oats give me gas. I always react that way to them and therefore avoid them.
I thought I’d add that I am celiac. I was lucky to be diagnosed as I had the “silent” kind. After going on a gluten free diet, I realized that the major reduction in gas indicated I wasn’t truly “silent”. I was lucky to never experience pain. I was also very lucky to get diagnosed.